A debate among scientists studying autism has erupted. At issue is language—for example, whether researchers should describe autism as a “disorder,” “disability,” or “difference,” and whether its associated features should be called “symptoms” or simply “traits.” In scientific papers and commentaries published in recent months, some have decried ableist language among their colleagues whereas others have defended traditional terminology—with both sides saying they have the best interests of autistic people in mind.
Since autism’s earliest descriptions in the academic literature as a condition affecting social interaction and communication, researchers and clinicians have framed it as a medical disorder, with a set of symptoms to be treated. Historically, autistic children have been institutionalized and subjected to treatments involving physical punishment, food restriction, and electric shocks. Even today, the most widely used autism therapy—applied behavior analysis—is seen by some as a harmful tool of normalization. Many autistic people and their families have embraced the view that their difficulties lie not with their autism, but with a society that isn’t built to support them.
But according to some autism researchers, the field still too often defaults to terms with negative connotations. For example, in addition to “symptom” and “disorder,” many scientists use the term “comorbid” rather than the more neutral “co-occurring” to describe conditions that tend to accompany autism. Similarly, some argue the oft-used phrase “people with autism,” as opposed to “autistic person,” can imply that autism is necessarily an unwanted harmful condition.
In a recent survey of 195 autism researchers, 60% of responses included views about autistic people the study authors deemed dehumanizing or stigmatizing. Some responses described autistic people as “shut down from the outside world” or “completely inexpressive and apparently without emotions,” according to the November 2022 Frontiers in Psychology study. “What is worse than I thought was how obvious a lot of the content was, which shows that, for a large proportion of participants, they did not consider the things they were saying to be problematic at all,” says lead author Monique Botha, a psychologist at the University of Stirling.
Ableist language and the mindset that underlies it also trickles down to study design, says Botha, who is autistic. In studies testing autism interventions, for example, researchers rarely track adverse reactions such as physical harm or psychological distress, found a 2021 study led by Kristen Bottema-Beutel, who studies special education at Boston College. This oversight suggests many researchers see autistic people as less than human, Botha says. “It’s one of the most pervasive practices that genuinely keeps me up at night.”
Botha’s attitude toward researchers’ views about autistic people is________.
sarcastic
tolerant
skeptical
worried
D